Blue Sunflower

About the Substack

The Raw Truth: Memoir, reflections, anecdotes about parenting our daughter with Congenital Heart Disease (CHD) and on being a bereaved mother. I hope to inspire personal connections and create greater awareness and compassion in the world.

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  • Occasional public posts

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About Susan Fusco-Fazio

I am an artist and bereaved parent who writes the pivotal stories of my life of then and now; when we parented our daughter with Congenital Heart Disease and navigated the medical system, and now while living with grief and loss.

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