Here I plan to write my story about my journey with Stiff Person Syndrome, what it's like living with a rare condition and how I survive day by day.
I have Stiff Person Syndrome, the same as Celine Dion, and I also have five kids (four ASD) and two cats. This is my life, how I deal with this debilitating condition and continue to care for my family.
I'm writer in Birmingham, UK. I write about freelance life, behind the scenes of gigs and ideas for keeping well. Posting fiction and poetry for paid subscribers. Published by Palewell Press, Floodgate Press. LL Writers&Artists. BBC Radio credits.
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