Anne’s Substack

About the Substack

Here I plan to write my story about my journey with Stiff Person Syndrome, what it's like living with a rare condition and how I survive day by day.

Free Subscription Benefits

  • Occasional public posts

Paid Subcription Benefits

  • Subscriber-only posts and full archive
  • Post comments and join the community

Paid Subscription Plans

  • $80 a year
  • $8 a month

About Strong and Rare

I have Stiff Person Syndrome, the same as Celine Dion, and I also have five kids (four ASD) and two cats. This is my life, how I deal with this debilitating condition and continue to care for my family.

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