Anne’s Substack

Anne’s Substack

About the Substack

Here I plan to write my story about my journey with Stiff Person Syndrome, what it's like living with a rare condition and how I survive day by day.

About Strong and Rare

I have Stiff Person Syndrome, the same as Celine Dion, and I also have five kids (four ASD) and two cats. This is my life, how I deal with this debilitating condition and continue to care for my family.