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Riaan's Newsletter

by Riaan Research Initiative

Riaan's Newsletter

About the Substack

Sign up for our newsletter and learn more about our journey to find a cure for our son Riaan's rare, fatal, and devastating neurodegenerative genetic disease, Cockayne Syndrome. Visit our foundation page for Riaan Research Initiative at riaanresearch.org.

About Riaan Research Initiative

Hunting for a cure for life-limiting genetic disorders, starting with Cockayne Syndrome (CSA/ERCC8) mutations.

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