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Riaan's Newsletter

by Riaan Research Initiative

Riaan's Newsletter

About the Substack

Sign up for our newsletter and learn more about our journey to find a cure for our son Riaan's rare, fatal, and devastating neurodegenerative genetic disease, Cockayne Syndrome. Visit our foundation page for Riaan Research Initiative at riaanresearch.org.

About Riaan Research Initiative

Hunting for cures for life-limiting genetic disorders, starting with Cockayne Syndrome.

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