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Hi there! I'm Emily. I'm a mom to an impossibly cute two-year-old who has an impossibly cruel terminal disease (Leigh Syndrome). Finding joy through long walks, cooking, dark humor, skiing, and creating sweet memories with my family.
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I write about real life with my sonโs rare disease, Leigh syndrome. Finding joy through long walks, cooking, dark humor, skiing, and creating sweet memories with our little family of 3.
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